Keith’s GoutPal Story 2020 Forums Please Help My Gout! Allopurinol and my Gout – Attack after starting meds.

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  • #3486
    burgeszz
    Participant

    Sups guys,

    ?

    I had the worst gout ?attack ever last month ?and was on crutches for 20+ days. The people on this forum and the help they provided were crucial in helping me make some decisions on what to do….. ?thank you for that.

    ?

    I started Allopurinol last month and have been taking it since then. ?I have been walking okay with my knee and it has been a slow recovery process…. but now I have another flare up. ?The flare up is in my right ankle and while it really hurts and I even pulled out the crutches to try and stay off of it – it doesn't compare to the attack in my knee. ?My ankle is swollen though and I can't walk or bend it in anyway. ?I have been eating pretty good but probably not drinking enough water but I was readiing that Allopurinol will actually cause flare ups for a little while after you start it. ?My doc didn't prescribe me anything at all to take along with it and I don't want to go back to the doc…. ?any suggestions?

    #10912
    hansinnm
    Participant

    burgeszz said:

    ??My doc didn't prescribe me anything at all to take along with it and I don't want to go back to the doc?. ?any suggestions?


    What kind of a doc do you have? The pharma boys must not have paid him too much under the table. With your gout attacks and pains he should have rubbed his hands and said: You are the perfect candidate for MORE meds, like Colchicine, or better yet Colcrys (the true scientifically produced and monitored medication of the modern man), and Naproxen (don't get that over-the-counter stuff:Aleve, that is not as good as the prescription drug. Remember the saying: You get the quality what you are paying for.)
    ?

    Now, all kidding aside: First get yourself a better doctor. Get your SUA checked so that you know where you or your body is. It's hard to navigate a road/life without roadsigns (your SUA is good sign to tell where you are driving.) Then make sure that you are getting the appropriate dosis of Allopurinol for YOUR condition. When an attack/flare starts take 1 or 2 Colchicines (0.6 ?mg) per day to fight the inflammation. Some, like Zip may even suggest 10/12-12/16 pills per day. (If you do, call in “sick” because you can't get more than 10-15 feet away from St. John without being sorry later on.) If you have excruciating pain, take additionally 1 or 2 Aleve to overcome that pain. (For me, 4-5 days 2 Colchicine and 2-3 days 2 Naproxen=Aleve generally do the trick. But that's me. Remember: Every goutie is different. YOU have to find your own niche.)

    #10917
    zip2play
    Participant

    burgeszz,

    ?

    How much allopurinol are you taking? Have you had your uric acid measured in the last month?

    ?

    Colchicine is my favorite analgesic (unless you are stuck in a country that has given?the patent to a rapacious drug company and sold as Colcrys at several thousand percent markup)?and if an attack is caught immediately very little colchicine is needed.

    Of course after a week of pain a LOT more colchicine is required.

    ?

    Remember, there is nothing wrong with needing MORE than 300 mg. allopurinol…let your uric acid be your guide.

    #10927

    burgeszz said:

    ?I was readiing that Allopurinol will actually cause flare ups for a little while after you start it. ?My doc didn't prescribe me anything at all to take along with it and I don't want to go back to the doc…. ?any suggestions?


    Yes, it might, even probably will, but not definitely will. Painkillers (especially colchicine) will deal with it. Discuss this with your doctor, because you MUST go back.

    ?

    Correct uric acid management depends on monitoring your uric acid level. You must get checked at least once a year whenever you are taking uric acid lowering meds. In the early stages, this needs to be once a month until your dose is stabilized.

    #10973
    simonbrooke
    Participant

    Hi,

    ??I'm hoping to start allopurinol soon and am dreading the resultant attacks. I know this may seem small fry but if you don't go back to your doctor, just remember that every time you even think an attack might be on it's way, start taking your full daily quota of anti-inflamatories and make sure you're getting enough water. Fill a two litre bottle or flask each day and make sure you drink it. It's not so hard if you make it into a habit, like a smoker goes reaches for a smoke at every little twist and turn of the day, you reach for a slug of water.

    ??Please keep us posted because, after this attack, I (and I suspect a fair few others here) will be right on your heels (if they're not too sore! – sorry).

    ?

    Good Luck

    Simon

    #10974
    zip2play
    Participant

    Not to be too repetitious, but I recommend starting with 400 mg. allopurinol and titrating down from there after a couple months if uric acid is super low.

    I think the higher dose of allopurinol will mitigate the likelihood of post allopurinol attacks. I can't PROVE it, but I think it is likely. Nothing to be lost but a few pennies a day.

    #10976
    toofast
    Participant

    Once again, as posted before…this from REAL LIFE recent experience.

    ?

    Get on and stay on allopurinol…dosage is up to you and docs.

    ?

    however, KNOW that you WILL have some flares on the early stages, perhaps up to a year.? BUT BUT BUT if you are super mindful, and as soon as you feel a flare up, start the colchicine…take one every few hours till your pain goes away.

    ?

    IT WORKS.

    ?

    Been on 300 Allpurinol for 45 days now…UA moving down from 10 to 6.5 (recent test)

    Had two flares..one minor one MAJOR.? Minor one was killed with two colchicine…major one took 6 colchicine..all while staying on the allopurinol.

    ?

    All other advise is right on…

    #10981
    zip2play
    Participant

    Glad to hear it's all working out well for you toofast.

    Why not consider upping your allopurinol to 400 mg. to guarantee that you slide down below 6.0 mg.dL.

    #10987
    toofast
    Participant

    zip,

    ?

    i have not had a blood SUA test since moving to 300 allopurinol.? I have one in a few weeks.? If not below 6, will increase to 400 mg then.

    ?

    I managed to get to 6.5 on the uloric…but of course that was not enough…you know the rest of the story.

    ?

    stay tuned on how 300mg impacts my levels…

    #11111
    Bulas14
    Participant

    burgeszz said:

    Sups guys,

    ?

    I had the worst gout ?attack ever last month ?and was on crutches for 20+ days. The people on this forum and the help they provided were crucial in helping me make some decisions on what to do….. ?thank you for that.

    ?

    I started Allopurinol last month and have been taking it since then. ?I have been walking okay with my knee and it has been a slow recovery process…. but now I have another flare up. ?The flare up is in my right ankle and while it really hurts and I even pulled out the crutches to try and stay off of it – it doesn't compare to the attack in my knee. ?My ankle is swollen though and I can't walk or bend it in anyway. ?I have been eating pretty good but probably not drinking enough water but I was readiing that Allopurinol will actually cause flare ups for a little while after you start it. ?My doc didn't prescribe me anything at all to take along with it and I don't want to go back to the doc…. ?any suggestions?


    I was on allopurinal, which does often cause flare ups. Monday morning went to my clinic for tried and true colchicine that I knew would knock it out in 2 days. Was told I had to pay the exhorbitant price for the new Colcrys. My gout at that time was minor, in my foot, but I could walk easy. Took the Colcrys about 10am. By 8pm that evening, severe, painful gout (and of course the swelling and broken blood vessels) had gone from minor to major in my ankle, knee (bigger than a grapefruit), left wrist and elbow. I was in so much pain (anyone whose had gout knows how bad that pain is) and unable to walk that I've been bedridden for four days, with more on the way. Its no fun having to be immobile and, because you can't walk or get out of bed, to have a bucket beside the bed. (You can guess what that's for). I hope no one has this experience with the new “monopoly” gout drug that is supposed to be the same as the tried and true colchicine.Yell

    #11113
    zip2play
    Participant

    I hope no one has this experience with the new “monopoly” gout drug that is supposed to be the same as the tried and true colchicine.Yell

    ?

    Bulas,

    the new version, Colcrys, is identical to the old orphan drug colchicine. The TROUBLE is being able to aford it in proper quantity and even get your doctor to PRESCRIBE it now that THE COMPANY? has proclaimed from on high that 3 pills?is enough (to stop half your pain.) This would be hilarious but for all the pain it is causing.

    Thank you Mr. Obama.

    #11115
    hansinnm
    Participant

    zip2play said:

    ?… This would be hilarious but for all the pain it is causing.

    Thank you Mr. Obama.


    Zip, this country deserves him, since greed, money and the dumb asses who voted for him put him there. Wait till they have to pay for insurance they can't afford and then been forced to pay penalty because they can't afford or don't want to line the pockets of the insurance extortionist with their hard earned money.

    #8375
    azasadny
    Participant

    I had several months of near constant pain when I started on the Allopurinol, but I managed it with ORC Alave (220mg) and now the pain is gone. I'm taking the Allopurinol, drinking 3-4 liters of water a day, drinking tart cherry juice mixed with the water, etc… Hang in there!

    #8376
    azasadny
    Participant

    I meant “OTC Aleve”, I'm not paying close enough attention to my typing…

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