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Hi All, I looked for my old thread but couldn’t find it so I’m posting here. Welp, I’m past my one year gout anniversary in August. Just to update everyone I’m still on 80mg Uloric therapy and so far it’s great. There isn’t a single sign left on my body of the gout attack that had me crawling on the floor to the bathroom last year. My SUA is a little up and down because I’ve gone to hell on my diet this summer with barbeque meats and beer. Still hasn’t been above 6.0 level at any testing so far. Still drinking 8 to 10 litters of water daily. I drink seltzer these days and it’s much easier to get it down than plain water. My main diet is still eating less and eating less meat and more veggies but I haven’t been able to lose weight but haven’t gained any either. The almost six months of not being able to walk really had me out of shape and I’m just getting back to walking normally and just a little tendon and muscle weakness still but I’m improving very well. Also my hands have come back and I can hold a full glass without fear and use my knife and fork normally. Not at full strength but compared to this time last year I’m good as new. 🙂
Thanks, Zip. Nice to see your face still hanging around here as well as some of the others. Even more inspiring though is all the new gouties that have found their way with GoutPal. Imagine if there was no GoutPal for them to “find the cure” so to speak. These drugs will be for the rest of our lives but without them who would want to be alive. 😉
Yeah- Good to see success Richard. I recall you had a very bad time back then. [without needing to check back]
Richard, how do you manage to drink 8-10 liters of fluid a day? That's amazing…and I'm really looking for tips on how you do it. Thanks, Lynda
Lyndak said:
Richard, how do you manage to drink 8-10 liters of fluid a day? That’s amazing?and I’m really looking for tips on how you do it. Thanks, Lynda
Oooops! Glad you asked, Lyndak. I made a mistake thinking the 1 liter bottles of seltzer were 2 liter bottles. So I must correct myself and say I drink 4 to 5 liters a day not 8 to 10 liters. 😳
I find it not very hard at all to drink seltzer instead of plain water and I get 5 liters at the supermarket for $3.00 US which is much cheaper than other bottled waters. Sometimes I’ll add a squeeze of lime or orange just to break up the monotony.
trev said:
Yeah- Good to see success Richard. I recall you had a very bad time back then. [without needing to check back]
Hi Trev, yes, and nice to see your still typing away here helping gouties that can’t get help elsewhere. Hope your not having any tinges these days. 🙂
I get about 5 or 6 liters of liquid a day. Mostly coffee and tap water (at about $.01 a gallon cost to landlord
) and a can of diet soda and some of that powder mix (Diet.) Make that 7 or 8 liters if I'm on a beer kick…I am now becasue of unbearable stress of contemplating moving. The older we get the less pleasant the thought of hauling detritus from one place to another.
Well Richard, you are human after all! I sincerely hope that you will have a long, pain free life post gout. Keep up the good work.
And Zip….7-8 liters is quite a lot….even with beer included. I mostly drink filtered water with various flavors of crystal light or the Wal-Mart equivalent, which is about half the cost. Is coffee really a good drink for gout? I know that uric acid is excreeted in urine. What would happen if I only drank 3-4 liters per day? Would my A-frame fall out (ha-ha). How much fluid should we be drinking?? There must be more than one person wondering about this.
Also, I would almost rather give things away than move them!
Lyndak said:
How much fluid should we be drinking??
How long is a piece of string? I think it's such an individual thing, based on so many factors: are you a hot or a cold person? how well do your kidneys function, how high is your SUA etc. Rule of thumb, however, I would say 2-3 litres (and I struggle even with that) should be adequate under normal circumstances i.e not in acute gout attack phase. If I drank 6 litres a day I'd never get any work done
Richard Bell said:
Hi Trev, yes, and nice to see your still typing away here helping gouties that can’t get help elsewhere. Hope your not having any tinges these days.
Not quite free yet Richard, the meds are keeping the urate mobile at present and my earlier management on diet etc is helping a lot.
I'll be interested to see how Sulfinpyrazone compares to in time to clear deposits. I did 7 miles walk [including steep climbs] yesterday and apart from being tired just had a few twinges in one toe last night that reminded me of the bad old days!AlloP
That included some pub wine[ watered by apple juice] and a huge veggy nut loaf- probably 80% protein…and loads of veg , of course 🙂
Sundays walk [not the steepest part, btw- 5 dropped out later]@Devils Chimney , Nr Cheltenham Gloucs., England.
PS: 2nd from last [with hat] – but I was first to the top !!
Lyndak said:
And Zip….7-8 liters is quite a lot….even with beer included. I mostly drink filtered water with various flavors of crystal light or the Wal-Mart equivalent, which is about half the cost. Is coffee really a good drink for gout? I know that uric acid is excreeted in urine. What would happen if I only drank 3-4 liters per day? Would my A-frame fall out (ha-ha). How much fluid should we be drinking?? There must be more than one person wondering about this.
Also, I would almost rather give things away than move them!
Yes, I drink a lot but not because I force it…I drink when thirsty. Maybe being a big guy (6'2″) my needs are higher. Coffee, the jury is out: many say it is GOOD for gout; I think that becasue caffeine is a purine it must be bad. But good or bad rarely comes into play in an addiction and I am an addict. I was given coffee and a roll for my breakfast before Kindergarten. Coffee was served after every meal.
Thinking about throwing out a LOT of detritus (gosh 1,000 LP's
.)zip2play said:
…Thinking about throwing out a LOT of detritus (gosh 1,000 LP's
.)
Since YOU have conquered GOUT, YOU have a nother 1000 years to live. Buy an ION LP to CD converter and sell your oldies to a collectors' store. I have done it, but luckily only converted ~15 or so. I can't afford to spend MY alotted “afterlife” on converting LP's.
Yep hans,
People have told me to convert to CD's, DVD's or hard drives. But then you hit the nail on the head: I'd hate to spend the entire remainder of my life trying to digitize all that info.
Also a BIG consideration is the thing that makes LP's a delight is their deliciously warm analog CONTINUOUS sound instead of the hard-edged sound of spot-sampled compressed digital music approximations. Listening to Kirsten Flagstadt or Lotte Lehmann immolating herself on an LP cannot be compared to listening to a digitized figment of her voice on CD.
Gosh, I think I just talked myself into jamming them into 15 cardboard boxes and dragging them along…the entire half ton.
AND I have another 800 CD's to go along also…lordy, and the TAPES, but only a couple hundred of them!
(I'm exhausting myself thinking)
Zip..thanks for your reply. I think what you were saying is “drink enough to stay hydrated” or until your urine is VERY light yellow. Different amounts for different folks.
And….dump the LP's. The way that technology is going, soon there will be a new format to replace CD's and then just look at all the time you would have wasted. Living in the present has taught me to forget and toss the past, make good choices in the present, and the future will take care of itself.
LyndaLyndak said:
…
And….dump the LP's. … the future will take care of itself.
Lynda
One more tree trunk to carry on your shoulder, Zip: When have you last listened to your 1000 LP's, 800 CD's, and a couple hundred of TAPES? Any you haven't for three years, forget about them. You most likely NEVER will again.
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